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Behavior problems

Here parents of children with Cerebral Palsy can post questions about caring for their child and get advice on special needs and care.

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Behavior problems

Postby lilitheve » Tue Nov 16, 2010 6:49 pm

So, I'm new to this site. My 7 year old had a stroke in utero and developed CP with R sided hemiparesis. Motor skills have always appeared to be the only thing really affected by the CP. His behavior, though, has always been a problem. His energy level is so high, I can barely contain it, from the moment he wakes up until the moment he finally falls asleep. He has no problems academically at school, or trouble concentrating, yet we have him on concerta (typically for ADHD) to help manage the hyperactivity. It seems to work. I notice he generally has a little bit of an escalation period now, whereas before he could blow up in frustration over something and I wouldn't even be aware there was a problem until it was too late. His official psychiatric diagnosis is nonspecified mood disorder secondary to brain damage. With the stroke, the higher brain functions like emotional control appear to have been affected. We think of it literally as a fuse that is just too short. --No fuse at all, to be more exact--
He is in first grade now and aggression is the biggest problem, at home as well as in the classroom. He gets angry over the smallest things. He gets angrier and won't listen when we ask "what made you so mad?" or "what's a better way to handle being mad"? For instance, he spit in someone's face at school today. When I asked him how he would feel if someone did that to him he replied "HOW WOULD YOU FEEL IF I JUST SPIT ON YOUR FACE??!!" He laughs about missing recess and getting in trouble at school. I've tried to model my discipline approach after his PT and OT, since he doesn't get this way (often) with them. It works great for an hour. It's the every day, 24 hours a day, that I'm having trouble with. I am recently remarried, and my husband is much more consistent with discipline than I am, so that has helped, when he is home. The recent change in marital status hasn't seemed to have an effect on my son's behavior. The screaming and fit-throwing just about has me at my wit's end. The only thing that really works (half the time) is telling him I won't interact with him at all when he's acting like that. He sits on the floor in my bedroom until he calms down and then he can come out. Lately he's been having to sit in my room an awful lot. And then he doesn't understand why privileges have been taken away.
Does anyone else have behavior problems like this in their kids with CP? Or is it more likely that the behavior and the CP are mutually exclusive?

Any response would be appreciated, thanks.
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Re: Behavior problems

Postby LeaciesMum » Wed Nov 17, 2010 3:31 pm

You poor love, it sounds like you're really having a hard time of it. My daughter has CP but no behavioural problems (thank the Lord) she actually does passive resistance and curls into a ball and goes silent when she's upset. But I do have a 21yo son who has ADHD and an intellectual disability and I know just how much hard work he was.

From what you're describing it sounds more like oppositional defiant disorder (ODD), has your paediatrician gone down that path with him at all?

I wish you all the luck and hope there is light at the end of the tunnel for you soon.
* A Strong Mind Can Compensate For A Weak Body *

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