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hi everyone im 22 and i have mild cerebral paslsy

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hi everyone im 22 and i have mild cerebral paslsy

Postby randomstar88 » Tue Jan 11, 2011 3:42 pm

hi there im claire i have mild cerebal palsy in both my legs i have had this since i was born was diagnosed when i was 6 years old had an operation to stretch my tendons when i was about 8 and had physio and support till i was about 12 years when i started high school.

i have been bulied all through school when i was growing up as i was different to all the other children at my school i went to a mainstream school as i was only mildly affected which means i have poor balance and co-ordination and i walk on my tip toes.

from the age of 12 i decided i didnt want to be treated anymore and was taken off the care plans and i managed to get through high school ok it was difficult but i managed to somehow fit in. i went to college at 16 and studied childcare for 2 years then went on to do health and social care for a further 2 years

once i had finished college i had my first summer job at a sealife centre just general duties in the shop and i worked in the activity area with the children,after about 3 months i started noticing the pain in my legs as i was standing all day this was making me feel very uncomfortable and it started to stress me out.

neways i plucked up the courage to go to the doctors which i hadnt been for a long long time since i was a young kid and they put me on the sick due to the pain i had been in and refered me to a physiotherapist and the hospital. i had a few physio sessions and waited about 6 months for my hospital appointment where the consulant told me there was nothing else he could do to help and said they would provide sum shoes to help leviate the pain so i was then refered to an orthotic specialist where they made me sum boots which took about 6 months to actually get as they had to be sent back several times for adjustments when i finally got my boots they cut the back of my ankles so i didnt really wear them.

in may 2010 ii moved up here to newcastle u.k to be with my partner and have since been to the doctors about the pain i am in with my legs and walking i have been refered to physiotherapy again and am currently having sessions to help my balance i have seen the specialist doctor and they told me i may have the option of surgery again so i am currently waiting to see a specialist.

[/size] the main reason i am on here is that i am now finding it difficult to cope with the pain im in and with walking and the emotional strain it is causing me people dont seem to understand how i feel and how difficult im finding simple things at the moment and i am actually quite scared of what is going to happen next,i have always been such a positive person and never given up on ne challenge or task but i finding this really difficult and woud just like someone who may be expieriencing or have expierienced the same thing to talk to. thanks for reading this ne posts would be helpful thanks
claire =]
Never give up trying
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Re: hi everyone im 22 and i have mild cerebral paslsy

Postby subrata » Thu Jan 27, 2011 9:36 am

hi! i think those people who are suffering from mild cerebral paslsy should get inspiration from you.i really congrats you.
Have sound health
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Hey iam17 and I have Cerabaral Paslsy

Postby Katie » Thu Feb 10, 2011 5:14 am

hey there clare, My name is Katie and Iam 17 years old. I have Cerebaral Paslsy and was born with it. What coresd my C.P was a lack of oxegen at birth. I nely ended up in a wheelchiar but lookly I can walk. But when I was small and I was trying to wallk I would walk like a few steps then fall over aging. I couln't speak untill I was about 2 or 3 years old. when I was realy little I whent to a specail school. My mom and dad thought that I would nerver be able to go to a main streem school but I did. I uesd to have phsyio when I was youger and now iam wating to see a phsyio thearopist about my back becaues I keep on getting pians in my back. I have also suffer with a diorder wich is known as Dystonia wich is like I get musle spasums in my back . I didn't have Dystonia when I was born . A cople of years back I just happed to wake up with it on moring and I have had it every sicne. I have got the contion for life now! I have very poor balance too. I have Ataxer wich is a tremmor you get in your hands. I uesd to walk on my tip toes and then they disided to put me in spints to help me walk. I had to wear splints for about 5 years but the thing is that I might have to go back in them beacues my walking is getting bad agin. I have got learnig difficultys and at my old school I ues to have one to one surport and there had to do all my writing for me becaues I can'rt write propely. I'm going to collage in september to do Foundation studdys and I'am going to be studdying a diplomer in persnol progress wich will be idle for me becaues I woud like to end up liveing on my own with help when iam 20 or 21. I live with my mom and step dad . On a mounday and friday morings I do volenty work at a play group with disabled children and on a tuesday nights I help out at a disabled sports club. I help a child with dowsyindome. I go to a disabled Teniss club on thursday nights and I love playing tennis it is my fave sport.
And thats about it realy and I will be looking forward to hearing from you soon

katiexx :D
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