Hello everyone, my name is Cathy! I am a mom to Cheyenne.
Cheyenne was born at 28 weeks gestation due to an infection that I never showed signs of until after the delivery.
She spent 59days in the NICU.
She was diagnosed at day 28 in the NICU.
When she came home she was on oxygen, an apnea monitor, and an NG tube for most of her feedings.
She graduated to all bottle feedings at about 5 months. But we always had major problems with feedings. Finally at 11months we were scheduled for an feeding study- which showed that she was asperating 90% of all her feeds.
She got an g-button a few days later and is strictly NPO now. She has had the g-button for 11months now.
She has Spastic Quadraplegia Cerebral Palsy- it affects her whole body.
So far she has rolled from her stomach to her back, and smiled.
She is in an wheelchair. She cannot speak yet, and is not mobile on her own.
She has therapy 3 times a week from our local early intervention program!
I hope to get to know everyone on this board- as I have been looking for a place to go and talk to people who know what I am talking about!!

