i'm almost 22 and have been on oral baclofen for about 5 or 6 years i think. i'm considering asking my dr. about stopping taking it just because i want to see what the difference is. i don't have extremely severe cp, i can walk pretty well by myself or with a walker. i take baclofen 3 times a day, 15mg in the morning, 15mg at lunch and 20 at night time. i notice that if i forget to take it at night i'll wake up in the middle of the night extremely restless, not even spastic, just wide awake. what i've noticed since i started taking it is that i wake up a lot in the night and never feel rested. anyways, i had a trial for the baclofen pump when i was 18 and that was a bloody nightmare so i will never go that route (it was where they put baclofen in through a spinal tap to see what it does). any stories about going off baclofen?

Hi Erin,
I have not had any experience with oral baclofen withdrawal but I have had withdrawal symptoms from the baclofen pump. I missed a refill appt. During the first few days I experienced horrible insomnia and did not sleep for 3 days. After that, I had severe spasms all over my body and a tingling sensation that would not stop. When I went and got my refill the following week, all symptoms were gone within 2 days. I would suggest gradually tapering off your dosage instead of stopping cold turkey.