Hello. I am hoping someone can steer me in the right direction. My daughter is 2 1/2 and was recently diagnosed with Triple X syndrome. Many of her symptoms are due to that but she has ones that are not, such as spasticity in her muscles. The three physical therapists that she sees are all very good and all say she presents as if she has a mild CP. I took her to the CP clinic near me and they completely dismissed my concerns and said she did not have increased tone. All three therapists say she does. She has poor oral motor, awful and delayed speech and is very weak on her left side in addition to the increased tone.
I am in San Diego, California. Does anyone have any suggestions???
Thank you!
You can email me directly as well. kcaedd@yahoo.com


