Hello, any suggestions?

[pink peonies]

Hello all. My boyfriend of 3 years has CP (he is 25). He doesn't like to talk about it, so its hard for me to understand. I have got a few answers from his mom. I was told he has mixed CP. He had occupational and physical therapy when he was little. What i notice is he has twitches all over. They dont seem to be localized to just arms or legs. He gets along good, he walks with no assistance, but does seem to have poor balance. He complains of sore muscles, mostly in his legs and back. What im worried about is his sleeping patterns. There are times when he will sleep for 2 days straight. The doctor put him on cyclobenaprine to help with his twitches so he can get to sleep. Im thinking maybe they are putting him to sleep. He says he is just tired from twitching. I was wondering if anyone else has the sleeping problem? Also, from what ive been reading. The movements can be hard on the joints. Are any of you taking vitamin supplements? He doesnt eat very well, i try to get him to eat good, but he doesnt. Ive suggested he go to a neurologist instead of the general doc. I just seem to get shut out when i try to talk about medical stuff. Im just worried and i want the best for him now and in the future. I find myself getting mad when he sleeps all the time and i feel bad, i know he cant help it. I just miss him and want to spend time with him. If anyone has ANY ideas or suggestions, medical or ways to talk to him please let me know. It will all be very appreciated.
Thanks so much!

[LizinTX]

First off Welcome to the boards. Sorry I haven't said anything sooner. I only get to check in here ever so often.

Anyhoo, about your problem. Here is the thing, he is a 25 year old adult, and if you try and force him to do anything you will hit a brick wall. The best you can do is talk to him about the fact that you want to help, and then ask him what that would be and what that would look like. Just have an open and honest conversation. If he is unwilling to discuss this with you, then take that as a huge cue, if ya'll are trying to build a life together and he is leaving you out of a large part of it, then you have some thinking to do.

If you are having difficulty in even getting this conversation started or need a referree of sorts to help things along, you can ask your clergy or even go to a family therapist. They will be more than willing to help get the dialogue flowing and since they are impartial no one will feel like they are getting ganged up on.

Good Luck.